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Epilepsy Support Groups

Epilepsy Support Groups

Description:

  • Children – Expressive Arts: Self exploration through the arts, working to build communication, social skills and each child’s own strengths, directed by Amara Burkesmith, MA, Expressive Arts Therapist/Educator.
  • Parents – Support Group: Open forum for discussion, information sharing and peer support for parents of children living with epilepsy, mixed with occasional guest speakers. PLEASE RSVP.

Contact: Shannon Wills, MSW, Program and Client Services Provider –  619.296.0161 x103 or email Shannon@epilepsysandiego.org

Description: Self exploration through the arts, working to build communication, social skills and each child’s’ own strengths, facilitated by Amara Burkesmith, MA, Expressive Arts Therapist/Educator. PLEASE RSVP.

Contact: Shannon Wills, MSW, Program and Client Services Provider –  619.296.0161 x103 or email Shannon@epilepsysandiego.org

Description: For high school age teens 13-17 interested in networking with other teens and creating various projects and works of art. Teens and their teen siblings are welcome. Facilitated by Amara Burkesmith, MA, Expressive Arts Therapist/Educator. PLEASE RSVP.

Contact: Shannon Wills, MSW, Program and Client Services Provider –  619.296.0161 x103 or email Shannon@epilepsysandiego.org

Description: A social group for 18-35 year olds, with activities such as board games, beach volleyball and movie nights.  PLEASE RSVP.

Contact: Shannon Wills, MSW, Program and Client Services Provider –  619.296.0161 x103 or email Shannon@epilepsysandiego.org

Date/Time: 3rd Thursday of each month 12:00-1:00pm

Location: Joyce Beers Uptown Community Center 3900 Vermont St., San Diego, CA 92103

Contact: Shannon Wills, MSW, Program and Client Services Provider – 619.296.0161 x103 or email Shannon@epilepsysandiego.org

Description: Adults with epilepsy meet monthly to hear from a variety of expert speakers on topics relevant to the community while also having the opportunity to ask questions and engage with fellow members. RSVP required 24 hours in advance.

Description: Facilitated forum for discussion, information sharing and peer support. Childcare provided. PLEASE RSVP. 

Contact: Shannon Wills, MSW, Program and Client Services Provider – 619.296.0161 x103 or email Shannon@epilepsysandiego.org

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Our Programs

School Nurse Training

School Nurse Training

How to assist students with seizures with training for nurses and school personnel. 

Date

Wednesday, March 17, 2021

Time

2:00 - 3:30 pm.

Contact

To register, please contact Shannon Wills, M.S.W., Programs & Client Services Manger at shannon@epilepsysandiego.org or
(619) 296-0161 ext. 103.

Participants will learn:

  • The impact of seizures on learning and behavior.
  • Current treatment options and their side effects.
  • Simple strategies for creating a more positive and supportive environment.
  • Critical issues related to medication administration.
  • Key components of a seizure action plan.
  • Appropriate first aid for all seizure types.
  • The essential elements of seizure training for school personnel.
  • Steps you can take now to help maximize educational and developmental opportunities for students with seizures.
 

District & School Plan Connection:

The Managing Students with Seizures program addresses the LCAP priority area of Student Engagement (School Attendance Rates).

Registration is required. Each participant will receive a Zoom link and free workshop materials.

CEU units are available, if you attend the entire day of training.

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Seizure First Aid Training

Seizure First Aid Training

Professionals, people with epilepsy, their caregivers and the general public can learn more about epilepsy, seizures and seizure first aid. The more people learn and gain skills about epilepsy and seizures, the more confident we can be that people living with epilepsy will be surrounded by caregivers and professionals that understand how to respond to their seizures.

Cost

Free

Register

National LIVE Webinars or On-Demand Training

Contact

For more information about seizure first aid training, please contact Shannon Wills, M.S.W., Programs & Client Services Manger at shannon@epilepsysandiego.org or
(619) 296-0161 ext. 103.

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Camps

Due to COVID-19, all 2020 & 2021 camps have been cancelled. We are looking forward to seeing you for Family Camp and Camp Quest in 2022!

Family Camp

May 15-17, 2020

Sponsored by the Epilepsy Foundation of San Diego County: May 15-17, 2020 ◦ YMCA Camp Marston ◦ Julian, CA

Email shannon@epilepsysandiego.org for more information.

This two night experience is for families who have a child with epilepsy. It is a wonderful option for first-time campers to get the camp experience before attending on their own. It is also a chance to have fun as a whole family in the mountains of Julian, while also meeting other families affected by epilepsy! Applications are accepted on a first come, first served basis. Space is limited.

Summer Camp

Sponsored by the Epilepsy Foundation of San Diego County: July 12-17, 2020 ◦ YMCA Camp Marston ◦ Julian, CA

Camp…where a kid can be a kid! Camp Quest for Kids is a five-night resident camp experience for children with epilepsy ages 7 to 13 (grades 2-8 in Fall). Camp children are integrated into the YMCA summer camp program, with the addition of a registered nurse to provide extra support. Children attending Camp Quest for Kids must be able to care for their own basic needs, follow direction and participate in most regular camp activities. Camp scholarships are provided by Epilepsy Foundation of San Diego County donors. Applications are accepted on a first come, first served basis.

Email: shannon@epilepsysandiego.org for more information.

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Teens Speak Up!

Teens Speak Up!

The Teens Speak Up! & Public Policy Institute (TSU-PPI) is the Foundation’s signature advocacy initiative. This biennial conference brings together more than 175 advocates, including local Epilepsy Foundation office staff, families, health care providers and volunteers from across the country to make a difference. Teens living with epilepsy and a family member have the opportunity to visit the nation’s capital to receive advocacy training and meet with their lawmakers to share their experiences and discuss issues that are vital to the epilepsy community.

These passionate young advocates help to represent the 470,000 children living with epilepsy when they go up on Capitol Hill. It is also an incredible opportunity for teens – and their families – to connect with each other. Each teen is asked to turn their training into action in their respective home districts through a Year of Service. Through this program, participants learn the latest about epilepsy, their rights and governmental happenings and help strengthen our nationwide advocacy network.

Contact Us

For more information about this program, please contact Shannon Wills, M.S.W., Programs & Client Services Manger at shannon@epilepsysandiego.org or (619) 296-0161 ext. 103.

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College Scholarships

College Scholarships

The Epilepsy Foundation of San Diego County awards college scholarships annually.  2021-22 Academic Year scholarships are due May 1, 2021. 

Scholarship Program Information

Scholarship Application 2021

Eligibility

Scholarship applicants must be permanent residents of San Diego County, Imperial County or Southern Riverside County. Applicants may be enrolled in a school outside of these areas.  Scholarship applicants must also meet one of the following criteria:

1. Students currently being treated for epilepsy that are currently enrolled or will be enrolled in a college, university or trade school in the fall of 2021.  Applicants must provide a letter from their doctor verifying that they are currently being treated for epilepsy/seizure disorder.  Applicants must also show satisfactory academic performance and demonstrate financial need. (The criteria for “satisfactory academic performance” do not necessarily mean high GPA.  It will be considered according to the capabilities of the student given any learning disabilities, medication side effects, etc.).

OR

2. Full-time college or university students involved in epilepsy research projects in the fields of health or social science. Applicants must provide a letter from their professor documenting project details. Students must also have a GPA of at least 3.0 for all work completed and demonstrate financial need.

The following documents must be included in the application package:

  1. Completed scholarship application
  2. Statement of Eligibility
  3. Statement of Financial Need
  4. Current transcript (official or unofficial) verifying enrollment and GPA
  5. Letter from your doctor stating you are currently being treated for epilepsy OR letter from your professor stating you are currently working on an epilepsy research project (please include project details)
  6. Two letters of recommendation
  7. For more information and to apply, please contact 619.296.0161 or email Shannon Wills at shannon@epilepsysandiego.org

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Music Therapy for Kids & Teens

Music Therapy for Kids & Teens

We partner with Resounding Joy, a local music therapy non-profit, to provide recreational music therapy for kids and teens impacted by epilepsy.

Format

6 group Zoom sessions over an 6-week period Zoom sessions last one hour

Participants

Kids & Teens, ages 11-18 with epilepsy

Contact

For more information about this program, please contact Shannon Wills, M.S.W., Programs & Client Services Manger at shannon@epilepsysandiego.org or
(619) 296-0161 ext. 103.

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Project UPLIFT

What is Project
UPLIFT?

The Project UPLIFT program is an evidence-based, 8 week program using mindfulness and cognitive behavioral therapy. Participants must commit to 1 hour, weekly group sessions where they will learn many valuable skills that have been shown to improve depression, psychological well-being and quality of life in people living with epilepsy.

Format

8 group Zoom sessions over an 8-week period Zoom sessions last one hour

Participants

Adults with epilepsy

(5-7 participants per Zoom group)

Contact

For more information about this program, please contact Lori Bonfiglio.

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Lori Bonfiglio

Project UPLIFT Facilitator

Lori Bonfiglio has been volunteering and working with the epilepsy community for over five years and has a son living with epilepsy. She was the Program Coordinator with the Epilepsy Foundation Greater Los Angeles for over two years and an active volunteer prior to that. Currently, as a trained UPLIFT facilitator, she facilitates Project UPLIFT groups working with individuals through the Epilepsy Foundation of San Diego County.

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Support Services & Programs

Support Services & Programs

We know that navigating life with epilepsy can be at times mentally challenging as well as physically. That’s why we offer support services like counseling and more for individuals, families and caregivers.

General Support Services

Get More Information

Learn More About the services that we offer and how we can help you.
Learn More

Additional Support Services For Adults

Get More Information

Learn More About the services that we offer and how we can help you.
Learn More

Additional Support Services for Children & Teens

Get More Information

Learn More About the services that we offer and how we can help you.
Learn More

Epilepsy Education and Seizure First Aid

Get More Information

Learn More About the services that we offer and how we can help you.
Learn More

For more information about any of our support services and programs, contact Shannon Wills, M.S.W., Programs and Client Services Manager, at shannon@epilepsysandiego.org ro (619) 296-0161 ext. 103.

Categories
Our Programs

Support Groups

Epilepsy Support Groups

Description:

  • Children – Expressive Arts: Self exploration through the arts, working to build communication, social skills and each child’s own strengths, directed by Amara Burkesmith, MA, Expressive Arts Therapist/Educator.
  • Parents – Support Group: Open forum for discussion, information sharing and peer support for parents of children living with epilepsy, mixed with occasional guest speakers. PLEASE RSVP.

Contact: Shannon Wills, MSW, Program and Client Services Provider –  619.296.0161 x103 or email Shannon@epilepsysandiego.org

Description: Self exploration through the arts, working to build communication, social skills and each child’s’ own strengths, facilitated by Amara Burkesmith, MA, Expressive Arts Therapist/Educator. PLEASE RSVP.

Contact: Shannon Wills, MSW, Program and Client Services Provider –  619.296.0161 x103 or email Shannon@epilepsysandiego.org

Description: For high school age teens 13-17 interested in networking with other teens and creating various projects and works of art. Teens and their teen siblings are welcome. Facilitated by Amara Burkesmith, MA, Expressive Arts Therapist/Educator. PLEASE RSVP.

Contact: Shannon Wills, MSW, Program and Client Services Provider –  619.296.0161 x103 or email Shannon@epilepsysandiego.org

Description: A social group for 18-35 year olds, with activities such as board games, beach volleyball, and movie nights.  PLEASE RSVP.

Contact: Shannon Wills, MSW, Program and Client Services Provider –  619.296.0161 x103 or email Shannon@epilepsysandiego.org

Date/Time: 3rd Thursday of each month 12:00-1:00pm

Location: Joyce Beers Uptown Community Center 3900 Vermont St., San Diego, CA 92103

Contact: Shannon Wills, MSW, Program and Client Services Provider – 619.296.0161 x103 or email Shannon@epilepsysandiego.org

Description: Adults with epilepsy meet monthly to hear from a variety of expert speakers on topics relevant to the community while also having the opportunity to ask questions and engage with fellow members. RSVP required 24 hours in advance.

Description: Facilitated forum for discussion, information sharing and peer support. Childcare provided. PLEASE RSVP. 

Contact: Shannon Wills, MSW, Program and Client Services Provider – 619.296.0161 x103 or email Shannon@epilepsysandiego.org

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