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Epilepsy Support Groups

Epilepsy Support Groups

Description: Open forum for anyone who has epilepsy or loves someone with epilepsy. There will be discussion, information sharing and peer support, mixed with occasional guest speakers.

When: 1st Thursday of every month

Time: 6-7 PM

Where: Zoom

Contact: Sarah Waters, Programs Manager –  619.296.0161 x103 or email sarah@epilepsysandiego.org

Description: Open forum for discussion, information sharing and peer support.

When: 2nd Thursday of every month

Time: 12-1 PM

Where: Zoom

Contact: Sarah Waters, Programs Manager –  619.296.0161 x103 or email sarah@epilepsysandiego.org

Description: Open forum for adults with epilepsy for discussion, information sharing and peer support.

When: 3rd Thursday of every month

Time: 12-1 PM

Where: Zoom

Contact: Sarah Waters, Programs Manager –  619.296.0161 x103 or email sarah@epilepsysandiego.org

Description: Open forum for the epilepsy community to learn about various wellness, stress management, mindfulness, and self-nurturing practices to cultivate a sense of well-being and thrive.

When: 4th Thursday of every month

Time: 6-7 PM

Where: Zoom

Contact: Sarah Waters, Programs Manager –  619.296.0161 x103 or email sarah@epilepsysandiego.org

 

The Epilepsy Foundation of America is offering a Young Adult Bereavement Virtual Support Group.

Description: If you have lost a sibling due to epilepsy, you’re not alone. Join the Young Adult Bereavement Virtual Support Group for people ages 18-26 and connect with others who have experienced the same loss.

When: 3rd Tuesday of every month

Time: 4 PM

Where: Zoom

Registration is required and those who are interested can sign-up using this link: https://bit.ly/3lEnBdd

¿Tiene epilepsia o conoce a alguien con epilepsia? Están invitados a participar en el foro abierto para la discusión, intercambio de información, y apoyo entre pares, (combinado con oradores invitados ocasionales) con la Fundación de Epilepsia de San Diego.

Cuándo: el 1er Jueves de cada mes a las 6pm.

Contacto: Gladis Arana, Programas en Español – (619) 296-0161 x104 o correo electrónico Gladis@epilepsysandiego.org

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Our Programs

School Nurse Training

School Nurse Training

How to assist students with seizures with training for nurses and school personnel. 

Date

TBA

Time

TBA

Contact

To register, please contact Kelley Grimes, MSW at kelley@epilepsysandiego.org or
(619) 296-0161 ext. 102.

Participants will learn:

  • The impact of seizures on learning and behavior.
  • Current treatment options and their side effects.
  • Simple strategies for creating a more positive and supportive environment.
  • Critical issues related to medication administration.
  • Key components of a seizure action plan.
  • Appropriate first aid for all seizure types.
  • The essential elements of seizure training for school personnel.
  • Steps you can take now to help maximize educational and developmental opportunities for students with seizures.
 

District & School Plan Connection:

The Managing Students with Seizures program addresses the LCAP priority area of Student Engagement (School Attendance Rates).

Registration is required. Each participant will receive a Zoom link and free workshop materials.

CEU units are available, if you attend the entire day of training.

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Our Programs

Seizure First Aid Training

Seizure First Aid Training

Professionals, people with epilepsy, their caregivers and the general public can learn more about epilepsy, seizures and seizure first aid. The more people learn and gain skills about epilepsy and seizures, the more confident we can be that people living with epilepsy will be surrounded by caregivers and professionals that understand how to respond to their seizures.

Cost

Free

Register

National LIVE Webinars or On-Demand Training

Contact

For more information about seizure first aid training, please contact Sarah Waters, Programs Manager at sarah@epilepsysandiego.org or
(619) 296-0161 ext. 103.

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Teens Speak Up!

Teens Speak Up!

The Teens Speak Up! & Public Policy Institute (TSU-PPI) is the Foundation’s signature advocacy initiative. This biennial conference brings together more than 175 advocates, including local Epilepsy Foundation office staff, families, health care providers and volunteers from across the country to make a difference. Teens living with epilepsy and a family member have the opportunity to visit the nation’s capital to receive advocacy training and meet with their lawmakers to share their experiences and discuss issues that are vital to the epilepsy community.

These passionate young advocates help to represent the 470,000 children living with epilepsy when they go up on Capitol Hill. It is also an incredible opportunity for teens – and their families – to connect with each other. Each teen is asked to turn their training into action in their respective home districts through a Year of Service. Through this program, participants learn the latest about epilepsy, their rights and governmental happenings and help strengthen our nationwide advocacy network.

Contact Us

For more information about this program, please contact Sarah Waters, Programs Manager at sarah@epilepsysandiego.org or (619) 296-0161 ext. 103.

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College Scholarships

College Scholarships

The Epilepsy Foundation of San Diego County provides scholarships ranging from $250 – $2,000 annually to multiple college undergraduates. The Foundation also manages two in-memoriam scholarships:

  • The Michael Zapoticzny Memorial Scholarship, established in 2002, is named for 18-year-old Michael Zapoticzny, who passed away in 2001, from epilepsy during his freshman year at Rutgers University in New Jersey. His parents Steve and Sue Zapoticzny award up to $6,000 annually to one college undergraduate in Michael’s honor. 
  • The Kim Tallian Memorial Scholarship, established in 2024, will award $2,000 annually through 2028 to one college undergraduate. The scholarship honors the late Kim Tallian, PharmD, APh, BCPP, FASHP, FCCP, FCSHP who served on the Epilepsy Foundation of San Diego County’s Board of Director’s and Professionally Advisory Board. Kim was a speaker at many epilepsy conferences, teacher and school nurse trainings and Camp Quest.

2024-25 Academic Year Scholarships

Due May 1, 2024 

Eligibility

Scholarship applicants must be permanent residents of San Diego County, Imperial County or Southern Riverside County. Applicants may be enrolled in a school outside of these areas.  Scholarship applicants must also meet one of the following criteria:

1. Students currently being treated for epilepsy that are currently enrolled or will be enrolled in a college, university or trade school in the fall of 2024.  Applicants must provide a letter from their doctor verifying that they are currently being treated for epilepsy/seizure disorder.  Applicants must also show satisfactory academic performance and demonstrate financial need. (The criteria for “satisfactory academic performance” does not necessarily mean high GPA.  It will be considered according to the capabilities of the student given any learning disabilities, medication side effects, etc.).

OR

2. Full-time college or university students involved in epilepsy research projects in the fields of health or social science. Applicants must provide a letter from their professor documenting project details. Students must also have a GPA of at least 3.0 for all work completed and demonstrate financial need.

The following documents must be included in the application package:

  1. Completed scholarship application
  2. Community Service and Volunteer Experience/Academic Achievements
  3. Statement of Eligibility
  4. Statement of Financial Need
  5. Current Transcript (official or unofficial) verifying enrollment and GPA
  6. Letter from your doctor stating you are currently being treated for epilepsy OR letter from your professor stating you are currently working on an epilepsy research project (please include project details)
  7. Two Letters of Recommendation

For more information and to apply, please contact Sarah Waters, Programs & Client Services Manager at sarah@epilepsysandiego.org.

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Music Therapy for Kids & Teens

Music Therapy for Kids & Teens

We partner with Resounding Joy, a local music therapy non-profit, to provide recreational music therapy for kids and teens impacted by epilepsy.

Format

6 group Zoom sessions over an 6-week period Zoom sessions last one hour

Participants

Kids & Teens, ages 11-18 with epilepsy

Contact

For more information about this program, please contact Sarah Waters, Programs Manager at sarah@epilepsysandiego.org or (619) 296-0161 ext. 103.

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Support Groups

Epilepsy Support Groups

Description: Open forum for discussion, information sharing and peer support, mixed with occasional guest speakers. 

Contact: Devin Xayasomloth, MSW, LCSW, Programs and Client Services –  619.296.0161 x103 or email devin@epilepsysandiego.org

Description: A social group for 18-35 year olds, with activities such as board games, beach volleyball, and movie nights. 

Contact: Devin Xayasomloth, MSW, LCSW, Programs and Client Services –  619.296.0161 x103 or email devin@epilepsysandiego.org

Description: Adults with epilepsy meet monthly to hear from a variety of expert speakers on topics relevant to the community while also having the opportunity to ask questions and engage with fellow members. 

Contact: Devin Xayasomloth, MSW, LCSW, Programs and Client Services –  619.296.0161 x103 or email devin@epilepsysandiego.org

¿Tiene epilepsia o conoce a alguien con epilepsia? Están invitados a participar en el foro abierto para la discusión, intercambio de información, y apoyo entre pares, (combinado con oradores invitados ocasionales) con la Fundación de Epilepsia de San Diego.

Cuándo: 1er Jueves de cada mes a las 6pm.

Contacto: Gladis Arana, Programas en Español – 619.296.0161 x104 o correo electrónico Gladis@epilepsysandiego.org

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