Categories
Epilepsy Foundation of San Diego Events

Join the Epilepsy Foundation of San Diego County on Sunday, April 30, 2023 for Sharon’s Ride.Run.Walk

Online registration is now open for Sharon’s Ride.Run.Walk 2023, coordinated and hosted by the Epilepsy Foundation of San Diego County! 

We’re excited to return to De Anza Cove in Mission Bay, San Diego, to host our annual event that gets San Diego active in the name of epilepsy awareness. Rally your friends and family to come out and show their love for San Diego’s epilepsy community. 

This fun-filled, outdoor community event consists of a 5K run/walk, a 15-mile bike ride and a community picnic. Pre-register online or register onsite as an individual or as a team.

Pre-registration is $45 until Friday, March 31, 2023. After that, pre-registration is $50.

Sharon’s Ride.Run.Walk is also made possible with the help of volunteers, and the charitable support of sponsors and individual and team donors. 

Volunteer for Sharon’s Ride.Run.Walk. Volunteers are needed to help with a variety of event operations, from setup and breakdown, to cheering our race participants on towards the finish line. This is an ideal outdoor volunteering event, especially if you or someone you know has volunteer-hour goals for 2023.

Sponsor, underwrite, fundraise, or donate to Sharon’s Ride.Run.Walk. Sponsorships and underwriting packages are available at preset and custom-tailored levels. Individuals and team leaders can donate directly at preset or custom-filled levels or set up their own fundraising page to help us reach our fundraising goal of $100,000. 

When the average cost of care for a person living with epilepsy in the U.S. can be as much as $15,000/year, the free resources provided by the Epilepsy Foundation of San Diego County are invaluable. Please help us improve the lives of people and families in San Diego impacted by epilepsy. Sign up to participatevolunteer, sponsor, fundraise, and/or donate today!

Categories
Epilepsy Foundation of San Diego Events

Sharon’s Ride.Run.Walk. in April will help spread awareness and raise money for San Diegans with Epilepsy.

SAN DIEGO (KUSI) – Feb. 14 is International Epilepsy Day. Epilepsy is the worlds 4th most common neurological disorder.

On April 24, 2022, Sharon’s Ride. Run. Walk. will help educate, spread awareness, and raise critical funds to make a difference for the 50,000 San Diegan’s living with Epilepsy.

During this event you can either choose to bike ride 15 -miles or run/walk the 5k.

Registration is open now! Register or fundraise for the event at: https://www.epilepsysandiego.org/

On Good Morning San Diego, KUSI’s Paul Rudy talked with Wendy Urushima-Conn, President & CEO of the Epilepsy Foundation of San Diego, about the Ride, Run, Walk coming up in April.

1 In 10 People Will Have A Seizure In Their Lifetime
1 In 26 Will Be Diagnosed With Epilepsy

This article was originally published by KUSI News.

Categories
Epilepsy Foundation of San Diego

National Epilepsy Awareness Month

Living with epilepsy can have its challenges. Some people with epilepsy hide their disorder, which can lead to feelings of isolation, helplessness and even depression. Adults with epilepsy oftentimes experience changes in their quality of life, such as mobility, relationships, employment, and social interactions. Children and teens with epilepsy find themselves feeling isolated and misunderstood; they may lose friends, may not be invited to birthday parties, or may be ostracized or even teased or bullied at school.

Epilepsy affects everyone. Everywhere. Period. Thanks to YOU, we have upped our game to better serve YOU.

The Epilepsy Foundation provides programs and education to make a safer place for YOU. The Epilepsy Foundation raises awareness and funds to provide help and serve YOU. The Epilepsy Foundation advocates for new laws to address issues that affect YOU. The Epilepsy Foundation invests in research and innovation to bring new therapies and technology to YOU faster than ever.  Let’s take action together and make November the loudest and purple-est National Epilepsy Awareness Month ever for YOU! This November, be everywhere. Educate everyone.

Get involved and help spread awareness:

Join us at our Upcoming Events

Take Action for Everyone Affected by Epilepsy

Share your action with your friends, family and followers to help them better understand epilepsy and inspire our community. Create a social media post telling us why it is important to take action for epilepsy.

#MyNEAMAction #NEAM2022

Fundraise Your Way to Help Fund Our Programs & Services

Start a Fundraiser on Facebook on behalf of the Epilepsy Foundation of San Diego and help raise awareness and critical funds for the San Diego epilepsy community.

#MyNEAMAction #NEAM2022

Get Seizure First-Aid Ready to Help Save a Life

Did you know that 1 in 10 people will have a seizure in their lifetime?

Make sure you are prepared to help a loved one, coworker, peer, or someone else in your life. Learn #SeizureFirstAid basics this November by taking our 30-minute, on-demand #SFAReady course HERE or contact us for personalized training at no cost. #MyNEAM Action

Donate to the Epilepsy Foundation of San Diego

Make a direct impact on the no-cost programs and services our foundation provides including training programs on seizure recognition and first aid, college scholarships, as well as access to specialty and suppotive care for the more than 50,000 people living with epilepsy here in San Diego.

In the News

Our President & CEO Wendy Urushima-Conn talks about National Epilepsy Awareness Month and our Gingerbread City fundraising gala on KUSI’s Good Morning San Diego.

Challenges of Epilepsy: Stats

 
  • 150,000 new cases of epilepsy occur each year in the U.S.

  • 470,000 children have epilepsy

  • 336,000 kids have at least one seizure annually.

  • 30% of people with epilepsy do not gain full control of their seizures and continue to struggle day-to-day with the threat of imminent seizures.

  • 32% of adults with epilepsy can’t work, compared with 7% of adults without epilepsy who can’t work.

  • 29% of adults with epilepsy can’t use a car or public transit to get places, compared with 8% of adults without epilepsy.

  • 21% of adults with epilepsy can’t pay for medicines vs. 9% without epilepsy.

  • 4 in 10 kids who had at least one seizure in the past year live in homes at or close to the poverty level.

  • 3 in 10 kids who had at least one seizure in the past year live in homes without enough food.

Our Mission

With your help, The Epilepsy Foundation of San Diego County leads the fight to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures and save lives.

Categories
Epilepsy Foundation of San Diego Events

The Epilepsy Foundation of San Diego County hosts the Gingerbread City Gala

SAN DIEGO (KUSI) – The annual 28th Gingerbread City Gala hosted by the The Epilepsy Foundation of San Diego County will take place at the San Diego Air & Space Museum in December.

CEO of the foundation Wendy Urushima-Conn goes on to tell us more about the event on December 9th.

The Epilepsy Foundation of San Diego County offers various services for those affected by the neurological disorder. They offer support groups, counseling, scholarship, first-aid, and more..

If you are interested in the event, you can buy tickets on their website: Epilepsy Foundation of San Diego.

This article was originally published by KUSI News.

Categories
Epilepsy Foundation of San Diego Events

Epilepsy Foundation to Host Gingerbread City Drive-Thru Event at Liberty Station

‘Tis the season for giving and helping others and the latter may be especially important this season due to the extra hardships brought upon countless communities by the coronavirus pandemic.

In typical years, year-end galas and holiday fundraisers would be held to help those in need. This year, however, has organizations shifting to virtual events or modifying their plans to keep attendants safe. The Epilepsy Foundation of San Diego County will be one of those organizations as they host their annual fundraising event but this time, with a twist.

The organization’s Gingerbread City will be a drive-thru affair at Liberty Station that will feature awe-inspiring (and delicious) gingerbread structures. The sweet aroma of the holiday classic cookie will be accompanied by festive music and decorations.

The event takes place this Saturday from 11 a.m. to 4 p.m.

And the best part? You’ll safely be in your car the whole time there.

“We have 11 gingerbread artists joining us this year and when I say artists, it’s not like me building a little house from Michael’s,” said Wendy Urushima-Conn, President & CEO, of Epilepsy Foundation of San Diego County. “They are these incredible pastry creations so we have a working mom who is an incredible artist on the side. We also have someone who has been on the Food Network and has won in their pastry challenge.”

The Epilepsy Foundation has been serving the San Diego community since 1954, offering personal advocacy and counseling, seizure first-aid training, and various services like expressive arts therapy and camp.

All of these services are free and available to anyone whose life is touched by epilepsy. That number may be more than you think; 50,000 San Diegans are impacted by the disorder.

Those who are interested in supporting The Epilepsy Foundation with this festive event can purchase tickets online.

Tickets start at $25 per car and the event is expected to sell out due to limited capacity. There are VIP upgrades available that include getting a family photo with Santa and a take-home wine and cheese package.

All of the money raised goes back into the foundation and the services it provides.

This article was originally written by NBC 7 San Diego.