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Teens Speak Up!

The Teens Speak Up! & Public Policy Institute (TSU) is one of the Epilepsy Foundation of America’s signature advocacy initiatives. This biennial conference brings together teens living with epilepsy, family members, local Epilepsy Foundation office staff, healthcare providers, and volunteers from across the country to make a difference.

Teens living with epilepsy and a family member have the opportunity to visit the nation’s capital to receive advocacy training and meet with their lawmakers to share their experiences and discuss issues that are vital to the epilepsy community. 

The TSU program supports the Epilepsy Foundation of San Diego County’s advocacy priorities to ensure access to quality, physician-directed, person-centered healthcare, funding for epilepsy programs, protection of disability rights, and research and innovation.

These passionate young advocates help to represent the 456,000 youth living with epilepsies in U.S. when they go up on Capitol Hill. It is also an incredible opportunity for teens – and their families – to connect with each other. Each teen is asked to turn their training into action in their respective home districts through a Year of Service. Through this program, participants learn the latest about epilepsy, their rights and governmental happenings and help strengthen our nationwide advocacy network.

The next conference will take place Sunday, March 16, 2025 through Tuesday, March 18, 2025, in Washington, D.C. The event will be held in conjunction with the National Epilepsy Walk on Saturday, March 15, 2025.

Contact Us

For more information about this program, please contact Programs & Client Services Manager Sarah Waters, ASW, MSW, at sarah@epilepsysandiego.org or (619) 296-0161 ext. 103.

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